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Although at 43 years old, I am paralyzed from the neck down and
unable to smile, breathe without a ventilator, or speak after being
afflicted with ALS,
please don’t feel sorry for me. I am happier, and more
fulfilled than I have ever been. Let me try to give you a
glimpse into my experience so far.
When I was of an impressionable age,
a wise man taught me the
phrase “The world is a smorgasbord, but most suckers are
starving to death”. This concept became ingrained in me, and I
live it every day.
I have
traveled far, had many diverse
adventures, and look back with few regrets.
As
my body has weakened to the point of being simply a support
system for my brain, I have become more in tune with my true
essence,
the world has more meaning, and my appetite for and ability to
comprehend new knowledge has grown. Recently I have developed a
passion for
digital painting; and have been exploring Astrophysics,
Quantum Mechanics, World History, Classical Music from the
baroque period, the nature of
human consciousness,
Physical
Anthropology of the Americas, the cultures, music, plights and
spirituality of various Native American Nations, and Asian music,
religions and philosophy. In the U.S.,
the blind and disabled library
provides a large selection of books on tape via U.S. mail.
I
have always been a traveler, and always will be. Because it is
now more difficult to travel to distant places, I have begun a
journey inward. I am on a quest to move toward the full potential
of human consciousness, and achieve a higher awareness of the
universe around me.
This pursuit has been just as fruitful and fulfilling as any
trip to a foreign culture. The souvenirs I bring back are
extremely precious, and useful as tools to become a more
positive force in this world.
I
believe I owe the pleasure that life brings me to living in the
present,
mindfulness meditation, my solid
upbringing, the
"Law of Attraction", and the elegant partnership I share with my
nurturing wife Jen. It is a beautiful gift to live on this
hospitable planet, during this era of rapid scientific
discovery. A time when more and more minds are opening to
the interdependent reality of our world. We should all cherish every moment.
If
you were recently diagnosed with ALS, understand that it is not
necessarily the horrible experience that most say it is.
From your unique perspective, you may have the ability to see
the full beauty and diversity of this life. You have a choice.

When we meet
real tragedy in life, we can react in two ways -
either by losing hope and falling into
self-destructive habits, or by using the
challenge to find our inner strength.
-Dalai
Lama
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